Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ PerspectivesReport as inadecuate




Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ Perspectives - Download this document for free, or read online. Document in PDF available to download.

Pain Research and Management - Volume 2017 2017, Article ID 2514920, 11 pages - https:-doi.org-10.1155-2017-2514920

Research Article

Faculty of Health and Social Care, Edge Hill University, Ormskirk, UK

School of Health and Well-Being, University of Central Lancashire, Preston, UK

Faculty of Health and Social Care, The Open University, Milton Keynes, UK

Correspondence should be addressed to Bernie Carter

Received 19 November 2016; Revised 11 February 2017; Accepted 9 March 2017; Published 26 March 2017

Academic Editor: José W. Geurts

Copyright © 2017 Bernie Carter et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Children with profound cognitive impairment PCI are a heterogenous group who often experience frequent and persistent pain. Those people closest to the child are key to assessing their pain. This mixed method study aimed to explore how parents acquire knowledge and skills in assessing and managing their child’s pain. Eight mothers completed a weekly pain diary and were interviewed at weeks 1 and 8. Qualitative data were analysed using thematic analysis and the quantitative data using descriptive statistics. Mothers talked of learning through a system of trial and error -learning to get on with it-; this was accomplished through -learning to know without a rule book or guide-; -learning to be a convincing advocate-; and -learning to endure and to get things right.- Experiential and reflective learning was evident in the way the mothers developed a -sense of knowing- their child’s pain. They drew on embodied knowledge of how their child usually expressed and responded to pain to help make pain-related decisions. Health professionals need to support mothers-parents to develop their knowledge and skills and to gain confidence in pain assessment and they should recognise and act on the mothers’ concerns.





Author: Bernie Carter, Janine Arnott, Joan Simons, and Lucy Bray

Source: https://www.hindawi.com/



DOWNLOAD PDF




Related documents