Impact of a child with congenital anomalies on parents ICCAP questionnaire; a psychometric analysisReport as inadecuate




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Health and Quality of Life Outcomes

, 6:102

First Online: 23 November 2008Received: 02 April 2008Accepted: 23 November 2008

Abstract

BackgroundThe objective of this study was to validate the Impact of a Child with Congenital Anomalies on Parents ICCAP questionnaire. ICCAP was newly designed to assess the impact of giving birth to a child with severe anatomical congenital anomalies CA on parental quality of life as a result of early stress.

MethodsAt 6 weeks and 6 months after birth, mothers and fathers of 100 children with severe CA were asked to complete the ICCAP questionnaire and the SF36. The ICCAP questionnaire measures six domains: contact with caregivers, social network, partner relationship, state of mind, child acceptance, and fears and anxiety. Reliability i.e. internal consistency and test-retest and validity were tested and the ICCAP was compared to the SF-36.

ResultsConfirmatory factor analysis resulted in 6 six a priori constructed subscales covering different psychological and social domains of parental quality of life as a result of early stress. Reliability estimates congeneric approach ranged from .49 to .92. Positive correlations with SF-36 scales ranging from .34 to .77 confirmed congruent validity. Correlations between ICCAP subscales and children-s biographic characteristics, primary CA, and medical care as well as parental biographic and demographic variables ranged from -.23 to .58 and thus indicated known-group validity of the instrument. Over time both mothers and fathers showed changes on subscales Cohen-s d varied from .07 to .49, while the test-retest reliability estimates varied from .42 to .91.

ConclusionThe ICCAP is a reliable and valid instrument for clinical practice. It enables early signaling of parental quality of life as a result of early stress, and thus early intervention.

AbbreviationsCACongenital Anomaly

MCAMultiple Congenital Anomalies

CDHCongenital Diaphragmatic Hernia

ICCAPImpact of a Child with Congenital Anomalies on Parents questionnaire

PSICUPediatric Surgical Intensive Care Unit

TISSTherapeutic Intervention Scoring System

CFIComparative Fit Index

TLTucker-Lewis index

RMSEARoot Mean Square Error of Approximation

WRMRWeighted Root Mean square Residual

rsSpearman-s rank order correlation coefficient.

Electronic supplementary materialThe online version of this article doi:10.1186-1477-7525-6-102 contains supplementary material, which is available to authorized users.

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Author: Petra Mazer - Saskia J Gischler - Hans M Koot - Dick Tibboel - Monique van Dijk - Hugo J Duivenvoorden

Source: https://link.springer.com/



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