A patient survey of the impact of fibromyalgia and the journey to diagnosisReport as inadecuate




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BMC Health Services Research

, 10:102

First Online: 26 April 2010Received: 24 September 2009Accepted: 26 April 2010DOI: 10.1186-1472-6963-10-102

Cite this article as: Choy, E., Perrot, S., Leon, T. et al. BMC Health Serv Res 2010 10: 102. doi:10.1186-1472-6963-10-102

Abstract

BackgroundFibromyalgia is a painful, debilitating illness with a prevalence of 0.5-5.0% that affects women more than men. It has been shown that the diagnosis of fibromyalgia is associated with improved patient satisfaction and reduced healthcare utilization. This survey examined the patient journey to having their condition diagnosed and studied the impact of the condition on their life.

MethodsA questionnaire survey of 800 patients with fibromyalgia and 1622 physicians in 6 European countries, Mexico and South Korea. Patients were recruited via their physician.

ResultsOver half the patients 61% were aged 36-59 years, 84% were women, and the mean time since experiencing fibromyalgia symptoms was 6.5 years. Patients had experienced multiple fibromyalgia symptoms mean of 7.3 out of 14, with pain, fatigue, sleeping problems and concentration difficulties being the most commonly reported. Most patients rated their chronic widespread pain as moderate or severe and fibromyalgia symptoms were on average -fairly- to -very- disruptive, and had a -moderate- to -strong- impact on patients- lives. 22% were unable to work and 25% were not able to work all the time because of their fibromyalgia. Patients waited on average almost a year after experiencing symptoms before presenting to a physician, and it took an average of 2.3 years and presenting to 3.7 different physicians before receiving a diagnosis of fibromyalgia. Patients rated receiving a diagnosis as somewhat difficult on average and had difficulties communicating their symptoms to the physician. Over one third 35% felt their chronic widespread pain was not well managed by their current treatment.

ConclusionsThis survey provides further evidence that fibromyalgia is characterized by multiple symptoms and has a notable impact on quality of life and function. The diagnosis of fibromyalgia is delayed. Patients wait a significant period of time before presenting to a physician, adding to the prolonged time to diagnosis. Patients typically present with a multitude of symptoms, all resulting in a delay in diagnosis and eventual management. Helping clinicians to diagnose and manage patients with fibromyalgia should benefit both patients and funders of healthcare.

Electronic supplementary materialThe online version of this article doi:10.1186-1472-6963-10-102 contains supplementary material, which is available to authorized users.

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Author: Ernest Choy - Serge Perrot - Teresa Leon - Joan Kaplan - Danielle Petersel - Anna Ginovker - Erich Kramer

Source: https://link.springer.com/







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