External review and validation of the Swedish national inpatient registerReport as inadecuate




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BMC Public Health

, 11:450

First Online: 09 June 2011Received: 02 September 2010Accepted: 09 June 2011DOI: 10.1186-1471-2458-11-450

Cite this article as: Ludvigsson, J.F., Andersson, E., Ekbom, A. et al. BMC Public Health 2011 11: 450. doi:10.1186-1471-2458-11-450

Abstract

BackgroundThe Swedish National Inpatient Register IPR, also called the Hospital Discharge Register, is a principal source of data for numerous research projects. The IPR is part of the National Patient Register. The Swedish IPR was launched in 1964 psychiatric diagnoses from 1973 but complete coverage did not begin until 1987. Currently, more than 99% of all somatic including surgery and psychiatric hospital discharges are registered in the IPR. A previous validation of the IPR by the National Board of Health and Welfare showed that 85-95% of all diagnoses in the IPR are valid. The current paper describes the history, structure, coverage and quality of the Swedish IPR.

Methods and resultsIn January 2010, we searched the medical databases, Medline and HighWire, using the search algorithm -validat* inpatient or hospital discharge Sweden-. We also contacted 218 members of the Swedish Society of Epidemiology and an additional 201 medical researchers to identify papers that had validated the IPR. In total, 132 papers were reviewed. The positive predictive value PPV was found to differ between diagnoses in the IPR, but is generally 85-95%.

ConclusionsIn conclusion, the validity of the Swedish IPR is high for many but not all diagnoses. The long follow-up makes the register particularly suitable for large-scale population-based research, but for certain research areas the use of other health registers, such as the Swedish Cancer Register, may be more suitable.

KeywordsClassification of diseases disease epidemiology morbidity register List of abbreviationsIPRSwedish Inpatient Register Slutenvårdsregistret

MIMyocardial infarction

NBHWNational Board of Health and Welfare Socialstyrelsen

PINPersonal Identity Number.

Electronic supplementary materialThe online version of this article doi:10.1186-1471-2458-11-450 contains supplementary material, which is available to authorized users.

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Author: Jonas F Ludvigsson - Eva Andersson - Anders Ekbom - Maria Feychting - Jeong-Lim Kim - Christina Reuterwall - Mona Heurgren

Source: https://link.springer.com/



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