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Reference: Price, A, (2016). Public led online trials and participatory action research: Why do we need them?. European Journal for Person Centered Healthcare, 4 (2), 340-340.Citable link to this page:

 

Public led online trials and participatory action research: Why do we need them?

Abstract: Aim: The aim of this paper is to propose a participatory action research network where the public are equipped with thetools to become informed and responsible shared research decision-makers who help prioritize, initiate, design, organize andparticipate in health research through online randomized controlled trials about health and wellbeing.Concept Summary: Public involvement in clinical trials tends to focus on patient values and experience rather thanincreasing research literacy or fostering active collaboration and informed shared decision-making amongst citizens.Although literature searches reveal bespoke platforms and pockets of participant collaboration in online trials there are noknown international research initiatives exploring this perspective through participatory action research. The potential andthe limitations of pragmatic Does it Work? clinical trials for engaging citizen collaborators is discussed in addition to thecapacity of public led online clinical trials to increase research literacy and participant satisfaction.

Publication status:PublishedPeer Review status:Peer reviewedVersion:Publisher's version

Bibliographic Details

Publisher: European Society for Person Centered Healthcare

Publisher Website: http://pchealthcare.org.uk/

Journal: European Journal for Person Centered Healthcaresee more from them

Publication Website: http://ubplj.org/index.php/ejpch/

Volume: 4

Issue: 2

Extent: 340-340

Issue Date: 26 July 2016

pages:340-340Identifiers

Doi: https://doi.org/10.5750/ejpch.v4i2.1095

Eissn: 2052-5656

Issn: 2052-5648

Uuid: uuid:1377bf7d-89d4-4a05-89e7-4d0f954e0de2

Urn: uri:1377bf7d-89d4-4a05-89e7-4d0f954e0de2

Pubs-id: pubs:668204 Item Description

Type: journal-article;

Version: Publisher's versionKeywords: participatory action research public led trials online trials person centered research

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Author: Price, A - Oxford, Continuing Education, Kellog College - - - - Bibliographic Details Publisher: European Society for Person Cent

Source: https://ora.ox.ac.uk/objects/uuid:1377bf7d-89d4-4a05-89e7-4d0f954e0de2



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