Before You Decide: What Families Would Like Policy Makers to Know.Report as inadecuate




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This booklet, developed by parents of children with developmental disabilities, is intended to help policy makers understand major parental concerns about raising a child with a disability. The specific issues addressed are: (1) the special needs of families with a disabled child; (2) the right to community integration; (3) the continuing difficulties in obtaining appropriate care; (4) the continuing difficulty of obtaining an appropriate public education in the least restricted educational environment, as required by law; (5) the need for better integration of available services; (6) the continuing obstacles despite accessibility requirements under the law; (7) special medical care problems; (8) the continuing problems with employers despite relief offered by the Family and Medical Leave Act of 1993; (9) finances, a constant source of stress to these families; (10) the continuing lack of accessible transportation services; and (11) the future, the dream of a future where every child is happy, loved, and successful. Each section contains factual information about the issue, an analysis of how families are typically affected, and quotations by family members describing their specific experiences. The booklet concludes with suggestions for both policymakers and parents. (DB)

Descriptors: Access to Education, Accessibility (for Disabled), Child Rearing, Day Care, Disabilities, Educational Needs, Elementary Secondary Education, Employed Parents, Family Needs, Family Problems, Financial Problems, Integrated Services, Medical Services, Parent Attitudes, Social Integration, Transportation

Center for Community Inclusion, Maine's University Affiliated Program, University of Maine, 5717 Corbett Hall, Orono, ME 04469-5717.









Author: Clark, Marsha J.; Kendrick, Martie; Chamberlain, Linda; Chesley, Esther; Clement, Stacie; Cummings, Dawn; Henri-Mackenzie, Sue; La

Source: https://eric.ed.gov/?q=a&ft=on&ff1=dtySince_1992&pg=9437&id=ED415630







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