Health Challenges of Family Members in End of Life Situations.Report as inadecuate


 Health Challenges of Family Members in End of Life Situations.


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Type of Resource: text

Genre: Electronic Thesis or Dissertation

Date Created: Spring 2016

Date Issued: 2016

Publisher: Florida Atlantic University

Physical Form: pdf

Extent: 222 p.

Language(s): English

Abstract/Description: The growing older adult population, their age-related morbidities, and lifelimitingchronic illnesses increase the demand for quality yet cost-effective end of life(EOL) care. Losing a loved one creates emotional turmoil, heightened uneasiness, andEOL uncertainties for family members. Understanding the complex needs of familymembers and supportive actions deemed most significant to them can guide nurses toenhance EOL care, encouraging palliation and peaceful death experiences. This studyused a qualitative descriptive exploratory design guided by story theory methodology toexplore the dimensions of the health challenge of losing a loved one who had been in anacute care setting during the last three months of life, the approaches used to resolve thishealth challenge, and turning points that prompted decisions about a loved one’s carewith 15 older adults residing in a Continuing Care Retirement Community (CCRC) inSoutheast Florida. Theoretical grounding for this study was Watson’s (1988, 2002)theory of human caring and Smith and Liehr’s (2014) story theory. Older adults’ storieswere analyzed through theory-guided content analysis. Themes that describe the health challenge include moving from painful holding on to poignant letting go, uneasiness thatpermeates everyday living and precious memories, patterns of disconnect that breeddiscontent, and pervasive ambiguity that permeates perspectives about remaining time.Approaches to resolve this challenge include active engagement enabling exceptionalcare for loved ones, appreciating the rhythmic flow of everyday connecting andseparating to get by, and embracing reality as situated in one’s lifelong journey. Failure toestablish normalcy, coming to grips with abrupt health decline/demise, and recognition –there’s nothing more to do – were the turning points identified by CCRC residents. Olderadults’ vivid recollections of losing a loved one and willingness to share EOL concerns aswell as recommendations regarding support of family members who are facing thischallenge serve as invaluable guidance for improving EOL care for dying patients andtheir family members.

Identifier: FA00004635 (IID)

Note(s): Includes bibliography.Dissertation (Ph.D.)--Florida Atlantic University, 2016.

Held by: Florida Atlantic University Digital Library

Sublocation: Boca Raton, Fla.

Persistent Link to This Record: http://purl.flvc.org/fau/fd/FA00004635

Restrictions on Access: All rights reserved by the source institution

Owner Institution: FAU



Author: Sopcheck, Janet , author Liehr, Patricia Dr., Thesis advisor Christine E. Lynn College of Nursing, Degree grantor

Source: http://fau.digital.flvc.org/islandora/object/fau%3A33494



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