Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changesReport as inadecuate




Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes - Download this document for free, or read online. Document in PDF available to download.

BMC Nephrology

, 13:103

First Online: 07 September 2012Received: 01 November 2011Accepted: 27 August 2012

Abstract

BackgroundLimited data exist on the impact of living kidney donation on the donor-recipient relationship. Purpose of this study was to explore motivations to donate or accept a living donor kidney, whether expected relationship changes influence decision making and whether relationship changes are actually experienced.

MethodsWe conducted 6 focus groups in 47 of 114 invited individuals 41%, asking retrospectively about motivations and decision making around transplantation. We used qualitative and quantitative methods to analyze the focus group transcripts.

ResultsMost deceased donor kidney recipients had a potential living donor available which they refused or did not want. They mostly waited for a deceased donor because of concern for the donor’s health 75%. They more often expected negative relationship changes than living donor kidney recipients 75% vs. 27%, p = 0.01 who also expected positive changes. Living donor kidney recipients mostly accepted the kidney to improve their own quality of life 47%. Donors mostly donated a kidney because transplantation would make the recipient less dependent 25%. After transplantation both positive and negative relationship changes are experienced.

ConclusionExpected relationship changes and concerns about the donor’s health lead some kidney patients to wait for a deceased donor, despite having a potential living donor available. Further research is needed to assess whether this concerns a selected group.

KeywordsDecision making Donor-recipient relationship Expectations Kidney transplantation Electronic supplementary materialThe online version of this article doi:10.1186-1471-2369-13-103 contains supplementary material, which is available to authorized users.

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Author: Ingrid B de Groot - Karen Schipper - Sandra van Dijk - Paul J M van der Boog - Anne M Stiggelbout - Andrzej G Baranski

Source: https://link.springer.com/



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